The ALD Alliance is fighting hard for newborn screening for ALD at the federal and state level. While there are no scheduled in-person events at this time...
Please check back soon for our 2021 Aidan's Ride Calendar.
We will be starting a monthly work group with Dr. Pierpont and Dr. Isaia (UMN) regarding the psychological impact of ALD. The goal is to provide recommendations and/or resources in the future for families impacted by this disease. Our virtual first meeting is scheduled for Tuesday, March 30th at 1PM EST. Please click on Psychological Impact of ALD Workgroup under "Aidan's Events" to register.
If you have any questions, please send an email to firstname.lastname@example.org. Both families and clinicians are welcome.
We will also be hosting quarterly calls to inform our community of legislative efforts in states and at the federal level. If you would like to be a part of these calls, please send an email to email@example.com.
We anticipate the legislative calls will begin in April 2021.
Lastly, the 6th annual ALD Standards of Care Conference will take place January 12-15, 2022.