ALD Standards of Care Conference & Newborn Screening Lab Consortium
The ALD Alliance hosts an annual ALD Standards of Care Conference. Thanks to all who joined in-person and virtually for our 7th annual meeting in March 2023. Recordings:
7th Annual ALD Standards of Care Conference Playlist
Quarterly consortiums are held virtually for newborn screening labs. Please see the remaining 2023 dates below. Registration for the June meeting will be available soon.
7th Annual ALD Standards of Care Conference Playlist
Quarterly consortiums are held virtually for newborn screening labs. Please see the remaining 2023 dates below. Registration for the June meeting will be available soon.
Thank you to our 2023 Conference Sponsors:
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The FDA approved bluebird bio’s gene therapy treatment for childhood cerebral ALD on September 16, 2022. Gene therapy is a treatment option for children with cerebral ALD that offers an alternative to allogenic hematopoietic stem cell transplant, eliminating the need for a bone marrow match.
Bluebird bio made their gene therapy treatment commercially available in the beginning of 2023 at designated treatment centers. In this video Dr. Christy Duncan, pediatric stem cell transplant physician, provides a medical overview of the treatment process. Representatives from bluebird bio follow with information about their supportive services and treatment locations. The program concludes with a brief Q&A.
Bluebird bio’s patient services program, my bluebird support, which is appropriate for both caregivers and clinicians to use, can be reached at: 1-833-888-NEST (6378) Monday–Friday, 8 am–8 pm ET or online at mybluebirdsupport.com.
Bluebird bio made their gene therapy treatment commercially available in the beginning of 2023 at designated treatment centers. In this video Dr. Christy Duncan, pediatric stem cell transplant physician, provides a medical overview of the treatment process. Representatives from bluebird bio follow with information about their supportive services and treatment locations. The program concludes with a brief Q&A.
Bluebird bio’s patient services program, my bluebird support, which is appropriate for both caregivers and clinicians to use, can be reached at: 1-833-888-NEST (6378) Monday–Friday, 8 am–8 pm ET or online at mybluebirdsupport.com.
