Elisa Seeger 
​Aidan's Mother & Founder

Elisa fights to make sure other boys and their families across the nation have the knowledge and resources they need to fight ALD. Immediately after her beautiful son Aidan passed away she fought to get newborn screening for ALD in New York State passed. Since then she continues to add other states onto her growing list of hope. Known for her compassion and strength she is the founder of the Aidan Jack Seeger Foundation.

Jaap-Jan Boelens MD
Jaap-Jan Boelens received his medical education at the University Medical Center Utrecht (Netherlands) and his PhD from the University of Amsterdam/Academic Medical Center.  He completed his residency in pediatrics from Leiden University Medical Center/Juliana Kinderziekenhuis and fellowships in both immunology (University Medical Center Utrecht, Netherlands) and oncology (Erasmus University Medical Center, Netherlands).  He spent a decade developing an umbilical cord blood transplant program in the Netherlands that is now the largest in Europe and was awarded the Swammerdam Prize for Innovation in Cell Therapy/Oncology from The Dutch Society of Hematology. He is currently a pediatric hematologic oncologist and Chief of the Pediatric Stem Cell Transplantation and Cellular Therapies Service at Memorial Sloan Kettering Cancer Center. He is a professor in pediatrics at Weill Cornell medical College and the Richard O'Reilly Chair in Honor of Kevin Zoltan.  He currently specializes in bone marrow and cord blood transplantation to treat blood diseases in children and young adults. He has particular expertise in caring for people with rare diseases, such as lysosomal storage disorders like Hurler’s disease and leukodystrophies like metachromatic leukodystrophy, adrenoleukodystrophy, and Krabbe disease.

Kristen Fowler, RN
Kristen Fowler earned her nursing degree from Fairmont State University of West Virginia. She has 8 years  of nursing experience, specializing in neuroscience both clinically and in case management roles. Kristen is attributed with creating our Aidan's Rides - which has now grown from West Virginia to over 15 states across  the country.

Eric Mallack MD 
Eric Mallack completed his A.B. in Philosophy and Biomathematics at The University of Scranton.  He then simultaneously earned his Medical Doctorate from the Temple University School of Medicine, and his Master’s Degree in Bioethics (MBE) from the University of Pennsylvania School of Medicine.  He completed his Pediatrics and Child Neurology Residency training at NewYork-Presbyterian Hospital/Weill Cornell Medical Center.   He is currently the Director of Clinical Research at The Moser Center for Leukodystrophies, Kennedy Krieger Institute and is also an Assistant Professor of Neurology at
Johns Hopkins University School of Medicine.  Dr. Mallack’s clinical interests include the diagnosis and treatment of rare neurogenetic disorders, with a focus on the leukodystrophies. His research interests include gene therapy and advanced neuroimaging.

Miranda McAuliffe
Miranda McAuliffe graduated summa cum laude from Marist College with a BA in  communications.  She received her MPA from Baruch College.  Prior to assisting with needs of the ALD Alliance, she worked as a blood drive coordinator for The New York Blood Center and an assistant director of admissions for St. Paul’s School of Nursing.  She lives on Staten Island with her husband and son, Jack, who was diagnosed with ALD at birth thanks to the implementation of newborn screening in New York.  Email: [email protected]

Gerald Raymond, MD
Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on adrenoleukodystrophy and other peroxisomal disorders. He has been actively involved in developing newborn screening for ALD and in clinical follow up programs. He has extensive experience in the clinical management of ALD in all phases of the condition and sees children and adults with all form of the condition.

Molly Regelmann, MD
​Molly Regelmann is an Assistant Professor of Pediatrics in the Division of Pediatric Endocrinology and Diabetes at the Children’s Hospital at Montefiore. Dr. Regelmann graduated magna cum laude from Cornell University with a degree in Biological Sciences.  She received her medical education at New York University School of Medicine and completed general pediatric residency training and pediatric endocrinology fellowship training at the Icahn School of Medicine at Mount Sinai. Currently, she is the Pediatric Endocrinology Fellowship Program Director at the Children’s Hospital at Montefiore and works as a general clinical pediatric endocrinologist with a particular interest in adrenal insufficiency.  She is a member of the Pediatric Endocrine Society’s Drug & Therapeutics and Rare Disorders Committee and has been a leader in the development of screening guidelines for adrenal insufficiency in newborn boys diagnosed with adrenoleukodystrophy. Dr. Regelmann has published review articles and case reports of boys with adrenoleukodystrophy and regularly speaks to healthcare and patient advocacy groups about the endocrine concerns associated with adrenoleukodystrophy.