Family Support
For information on monitoring, treatment, reproductive options & resources such as a list of ALD experts, please visit our other site:
A Parent's Guide to ALD
A Parent's Guide to ALD
Care Packages for Newborn Screen Families
If your baby boy was diagnosed through newborn screening in the last year, please register for one of our free care packages. The items provided are meant to help guide you through your diagnosis and make the monitoring process easier. You can find more about this program here:
If your baby boy was diagnosed through newborn screening in the last year, please register for one of our free care packages. The items provided are meant to help guide you through your diagnosis and make the monitoring process easier. You can find more about this program here:
Financial Support
Aidan’s Gifts helps families who face extreme financial stress attributed to the costs associated with caring for a child with ALD or another leukodystrophy.
Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.
Many times families come to the Foundation for assistance with a unique need – travel expenses associated with treatment, a wheelchair lift to enable a family to safely travel with their child or assistance in purchasing a vehicle to accommodate their child’s equipment needs. These are only a few examples of ways Aidan’s Gifts have helped our families focus on what matters most – caring for their child!
For more information on Aidan’s Gifts, please contact: Elisa Seeger elisa@aldalliance.org.
Aidan’s Gifts helps families who face extreme financial stress attributed to the costs associated with caring for a child with ALD or another leukodystrophy.
Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.
Many times families come to the Foundation for assistance with a unique need – travel expenses associated with treatment, a wheelchair lift to enable a family to safely travel with their child or assistance in purchasing a vehicle to accommodate their child’s equipment needs. These are only a few examples of ways Aidan’s Gifts have helped our families focus on what matters most – caring for their child!
For more information on Aidan’s Gifts, please contact: Elisa Seeger elisa@aldalliance.org.
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