This is an ongoing project with more content to come and would not be possible without the parents and family members who talked out the toughest of issues in our online forums throughout the pandemic. Here is a list of participants and/or contributors:
Kirsten Finn, Parent Advocate, Kansas
Kiomara Gonzalez, Parent Advocate, Georgia
Susan Marks, Parent Advocate, Washington
Miranda McAuliffe, ALD Alliance / Parent Advocate, New York
Tara Meady, Parent Advocate, Connecticut
Kathleen O’Sullivan-Fortin, Parent Advocate, Massachusetts
The Pantaleon Family, Advocates, Illinois
The Purschke Family, Advocates, Missouri
Elisa Seeger, ALD Alliance, New York
The Sheffer Family, Advocates, South Carolina
Jillian Smith, Parent Advocate, New Hampshire
The Torrey Family, Advocates, New Jersey
Amanda Valdez, Parent Advocate, Minnesota
Thank you to the parents and family members that have contributed but chosen to remain anonymous.
Kirsten Finn, Parent Advocate, Kansas
Kiomara Gonzalez, Parent Advocate, Georgia
Susan Marks, Parent Advocate, Washington
Miranda McAuliffe, ALD Alliance / Parent Advocate, New York
Tara Meady, Parent Advocate, Connecticut
Kathleen O’Sullivan-Fortin, Parent Advocate, Massachusetts
The Pantaleon Family, Advocates, Illinois
The Purschke Family, Advocates, Missouri
Elisa Seeger, ALD Alliance, New York
The Sheffer Family, Advocates, South Carolina
Jillian Smith, Parent Advocate, New Hampshire
The Torrey Family, Advocates, New Jersey
Amanda Valdez, Parent Advocate, Minnesota
Thank you to the parents and family members that have contributed but chosen to remain anonymous.