Last year, New York became the first state to require newborn screening for a genetic disorder called adrenoleukodystrophy, or ALD. The disorder rapidly attacks the nervous system. The most common form of ALD mainly affects young boys and can be fatal within a year.
But if ALD is detected in newborns, a bone marrow transplant can help them survive. The legislation is known as "Aidan's Law" for Aidan Jack Seeger, who died from ALD in 2012 at age 7. |
2 Comments
5/5/2025 12:49:51 am
What condition did New York begin screening newborns for last year?
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5/7/2025 05:50:44 am
You can learn more about what conditions New York is screening for here: https://www.wadsworth.org/programs/newborn/screening
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The ALD AllianceAddressing the need for information and newborn screening with respect to Adrenoleukodystrophy. Archives
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