Last year, New York became the first state to require newborn screening for a genetic disorder called adrenoleukodystrophy, or ALD. The disorder rapidly attacks the nervous system. The most common form of ALD mainly affects young boys and can be fatal within a year.
But if ALD is detected in newborns, a bone marrow transplant can help them survive. The legislation is known as "Aidan's Law" for Aidan Jack Seeger, who died from ALD in 2012 at age 7. |
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Add ALD to the Recommended Uniform Screening Panel (RUSP)
Please sign this new petition to have ALD added to the Recommended Newborn Screening Panel, the majority of states will NOT move forward without his happening. Thank you for your support. Together we can save the boys. |
The ALD AllianceAddressing the need for information and newborn screening with respect to Adrenoleukodystrophy. Archives
December 2023
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