 | The 3rd boy to be diagnosed with ALD in 30 days of testing in New York State. Newborn Screening for ALD in New York State started as of December 30, 2013. In just 30 days there have been 3 positive ALD boys and 1 girl with another disorder picked up by the test. Proof that newborn screening works!! Thankfully for Baby Matthew and his family: http://www.cnycentral.com/m/news/story?id=1013496#.UxERXxK9LCQ |
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Add ALD to the Recommended Uniform Screening Panel (RUSP)
Please sign this new petition to have ALD added to the Recommended Newborn Screening Panel, the majority of states will NOT move forward without his happening. Thank you for your support. Together we can save the boys. |
The ALD AllianceAddressing the need for information and newborn screening with respect to Adrenoleukodystrophy. Archives
August 2023
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